tag:blogger.com,1999:blog-28805597189440672262024-03-19T12:32:31.469+00:00two guys one kidneyThis is the blog of Pieter (the kidney recipient) and John (the kidney donor)Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-2880559718944067226.post-78132799687765205912019-03-14T10:11:00.000+00:002019-03-14T10:17:03.901+00:006 Years Later
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">It's been just
over 6 years since my organ donation to Pieter. The time has really flown
by! It's also World Kidney Day 2019 which calls for celebration and an update!</span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;"><br />
Thankfully Pieter and I are still both healthy and doing very well. For anyone considering
becoming a living kidney donor, from personal experience I can say with much
gratitude that I've not felt any difference physically between before and after
the donation. In fact because I'm so conscious of looking after my only kidney,
I've actively improved my health and lifestyle by maintaining a healthy diet,
exercising regularly, and reducing my stress levels. I've recently become a
Vegetarian, and by reducing my protein intake, you'll notice from the table
below an increase in my kidney function this year compared to previous years.</span><br />
<br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">Here is a
comparison of my GFR and Creatinine levels: </span><br />
<br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;"><br />
<u>
GFR: (ml/min)</u>
<u>Creatinine </u></span><br />
<u><span style="font-family: "Arial",sans-serif; font-size: 10.0pt;"><br /></span></u><span style="font-family: "Arial",sans-serif; font-size: 10.0pt;"></span>
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">Before the
operation
84
78</span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">Day of
discharge
not
tested
109</span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">6 weeks
later
62
117</span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">1 year
later
(2013)
79
96</span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">2 years later
(2014)
74
101 </span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">3 years later
(2015)
67
109 </span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">4 years later
(2016)
57
122 </span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">5 years later
(2017)
61
113 </span><br />
<span style="font-family: "Arial",sans-serif; font-size: 10.0pt;">6 years later
(2018)
71
99 </span><br />
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<br /></div>
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<b><span style="font-family: "Arial",sans-serif; font-size: 10.0pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-GB;">Creatinine</span></b><span style="font-family: "Arial",sans-serif; font-size: 10.0pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-GB;"> is a chemical waste product in
the blood that passes through the kidneys to be filtered and eliminated in
urine. The chemical waste is a by-product of normal muscle contractions.
Creatinine is made from creatine, a supplier of energy to the muscle. Creatinine
tests help doctors determine kidney function. Normal values are between 80
and 120 depending on age and size. </span></div>
<div class="MsoNormal" style="line-height: normal; margin-bottom: .0001pt; margin-bottom: 0cm;">
<br /></div>
<div class="MsoNormal" style="line-height: normal; margin-bottom: .0001pt; margin-bottom: 0cm;">
<b><span style="font-family: "Arial",sans-serif; font-size: 10.0pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-GB;">Glomerular
filtration rate (GFR)</span></b><span style="font-family: "Arial",sans-serif; font-size: 10.0pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-GB;"> is a test used by physicians and other medical
professionals to see if the kidneys are working correctly. In basic
terms, it is a measurement of how much liquid and waste is passing
from the blood through the tiny filters in the kidney, called
the glomeruli, and out into the urine during each minute. The
test measures how much creatinine is in the blood. This shows how
well the kidneys are performing. In a normal healthy person the GFR stays close
to the same value all of the time. The test is done by taking blood from a
person and sending it to a laboratory. Normal values are between 80ml/min and
110ml/min depending on age and size.</span></div>
<div class="MsoNormal">
<br /></div>
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<![endif]-->Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-90448658183770939822013-11-30T14:28:00.000+00:002013-11-30T14:28:51.959+00:00My annual check-up test results<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span>
<span style="font-family: Arial, Helvetica, sans-serif;">I just did a happy dance through the house for the past 30 minutes, after I received my test results! To call it miraculous would be an understatement!</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzcM5ZIcrHAs0RBSr-Mj01pgNQkJYh8aE-ei7bd5Dt08nD35xSAPOvEsZwe4dIm5JLu6IAsk6FVKYK5ydGmPrV5NqEsRCDoHX8C2BmTd6vm6A0dIv8Fsc7fsDoQTW-20yEslvOslMEn6Yv/s1600/HappyDance.gif_thumb.jpg.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="280" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzcM5ZIcrHAs0RBSr-Mj01pgNQkJYh8aE-ei7bd5Dt08nD35xSAPOvEsZwe4dIm5JLu6IAsk6FVKYK5ydGmPrV5NqEsRCDoHX8C2BmTd6vm6A0dIv8Fsc7fsDoQTW-20yEslvOslMEn6Yv/s320/HappyDance.gif_thumb.jpg.gif" width="320" /></a></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Here is a comparison of my GFR and Creatinine levels:</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span>
<span style="font-family: Arial, Helvetica, sans-serif;"> <u>Before the operation</u> <u>Day of discharge</u> <u>6 Weeks later</u> <u>One year later</u></span><br />
<u><span style="font-family: Arial, Helvetica, sans-serif;"><br /></span></u>
<span style="font-family: Arial, Helvetica, sans-serif;"><u>Creatinine:</u> 78 109 117 96</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><u>GFR:</u> (ml/min) 84 not tested 62 79</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="letter-spacing: 0px;"><b>Creatinine</b> is a chemical waste product in the blood that passes through the kidneys to be filtered and eliminated in urine. The chemical waste is a by-product of normal muscle contractions. Creatinine is made from creatine, a supplier of energy to the muscle. Creatinine tests help doctors determine kidney function. </span><span style="background-color: transparent;">Normal values are between 80 and 120 depending on age and size.</span><span style="letter-spacing: 0px;"> </span></span></div>
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<span style="letter-spacing: 0.0px;"><span style="font-family: Arial, Helvetica, sans-serif;"><b>Glomerular filtration rate (GFR)</b> is a test used by physicians and other medical professionals to see if the kidneys are working correctly. In basic terms, it is a measurement of how much liquid and waste is passing from the blood through the tiny filters in the kidney, called the glomeruli, and out into the urine during each minute. The test measures how much creatinine is in the blood. This shows how well the kidneys are performing. In a normal healthy person the GFR stays close to the same value all of the time. The test is done by taking blood from a person and sending it to a laboratory. Normal values are between 80ml/min and 110ml/min depending on age and size.</span></span></div>
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<span style="background-color: white;"><span style="line-height: 19px;"><span style="font-family: Arial, Helvetica, sans-serif;">So as you can see from this comparison, my kidney function with just one is almost as good as it was with two! Compare this to the fact that I was told during my tests not to be alarmed if the GFR is as low as 40, because that's apparently acceptable for donors. </span></span></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="background-color: white;"><span style="line-height: 19px;"><br /></span></span><span style="background-color: white;"><span style="line-height: 19px;">Now you'll understand why I'm so happy and </span></span><span style="line-height: 19px;">grateful! I saved my friend's life and I'm physically no worse off because of it. It's truly a miracle.</span></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="line-height: 19px;"><br /></span></span>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="line-height: 19px;"><br /></span></span>Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-24631306825024974382013-11-26T22:07:00.004+00:002013-11-27T14:38:17.355+00:00Our 1-year transplant anniversary!<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoqh1SEbBPx_9N6cVRqccrXZOs5qXqH-mPjHk05UMtxdePOXqV452iWOUQFshtl2AoLpPoHtmrbGUbTzOdIvXuTdK3MRn7eGNMsSbmMRrTQ1W1OPh9MOTllWRohc4GA5vRmq0-mhqs2IBE/s1600/IMG_5268.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoqh1SEbBPx_9N6cVRqccrXZOs5qXqH-mPjHk05UMtxdePOXqV452iWOUQFshtl2AoLpPoHtmrbGUbTzOdIvXuTdK3MRn7eGNMsSbmMRrTQ1W1OPh9MOTllWRohc4GA5vRmq0-mhqs2IBE/s400/IMG_5268.JPG" width="400" /></a></div>
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It's surreal to think that it's been exactly a year today since our very successful transplant operation! Some days it feels like yesterday, and other days like a dream.<br />
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What's undeniable is how well we're both doing. Pieter's creatinine levels have been normal since the day he received his new kidney, and is making the most of his good health. Pieter and Lizelle are finally fulfilling their dream of moving out of the city to leafy Surrey this weekend to enjoy a quieter life amongst all their friends. They also recently had a lovely 3-week tour of Italy. Pieter is healthy, positive, full of energy and most of all full of life.<br />
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I've been back to my full health after just 3 months and feel extremely grateful and blessed to be my old self as before the operation.<br />
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We would again like to thank everyone involved in this miracle: family, friends, colleagues, blog visitors, and everyone at the <a href="http://www.royalfree.nhs.uk/renal.aspx?top_nav_id=1&tab_id=991" target="_blank">Royal Free London Renal Unit.</a> Without all your love, support and expertise this would not have been possible.<br />
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Today I had my annual check-up, which is routine and which I will have every year for the foreseeable future. I was told that I'm still in very good health and that everything is normal, as can be expected. How amazing that one can give someone an organ and still lead a normal life!<br />
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My lovely wife, Natasja wanted to do something special for those unfortunate people who are still struggling with kidney disease/ failure, to show them there are people in the world who care about them, and to bring them comfort and hope. So on 09 November she organised a crochet event to raise funds for Kidney Research UK, raise awareness about kidney disease, and to crochet granny squares which were used to create beautiful blankets for dialysis patients. The event was a big success and we managed to raise £504 on the day, with enough granny squares to make 7 blankets. You can read all about the event on her blog my clicking <a href="http://crochetime.net/2013/11/10/read-all-about-our-day-of-crochet-for-kidney-research-uk/" target="_blank">HERE</a>.<br />
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Today I had the honour and privilege of hand delivering the blankets to the Royal London Hospital's Dialysis Centre.<br />
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These lovely ladies have offered to give the blankets to a few of the most needy individuals to bring them some comfort in these difficult times. I wish to show them that there are altruists out there, willing to help the sick and needy, asking for nothing in return. I'm sure our story will give them hope and keep them positive, that they can also experience the miracle of a new life.</div>
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I had the pleasure of personally handing over two of the blankets to two very happy and amazed people. They were so pleasantly surprised that a complete stranger would come and hand over such a lovely gift to them. And that's exactly why we decided to do it. We're all connected, and we're all a part of God (not apart from God) so what we do for others, we also do for ourselves.<br />
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Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-66370890675480267122013-06-16T21:00:00.000+01:002013-06-19T20:14:46.780+01:00Happy daysThis weekend, which marks <a href="http://twoguysonekidney.blogspot.co.uk/p/donor.html" target="_blank">a year since Pieter and I met</a>, we had the pleasure of spending some great quality time together. We are both doing extremely well and are so very grateful for it.<br />
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We both love fast cars, and we were in heaven when we had the opportunity to attend a super car event at the <a href="http://www.topgear.com/uk/" target="_blank">Top Gear</a> test track in Dunfold, England. The event was held and organised by <a href="http://www.thechildrenstrust.org.uk/" target="_blank">The Children's Trust</a> to raise awareness and funds. All the drivers donated their time and cars free of charge, and the money we paid to be driven around the track in style and at great speed went to <a href="http://www.thechildrenstrust.org.uk/" target="_blank">The Chidren's Trust</a>. Everyone was a winner! I was driven around the track in an <a href="http://www.youtube.com/watch?v=WaWoo82zNUA" target="_blank">Ariel Atom</a> and an Aston Martin DB9, and Pieter in the Audi R8 V10!<br />
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I made the following video as a bit of fun, with the events highly exaggerated, but not impossible!<br />
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Every time I see Pieter he looks healthier and happy. And it reminds me why I donated a kidney to him; not for money or fame, just one man seeing the need in another, wanting to help him, without expecting anything in return.<br />
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In this world, the sad reality is that everything revolves around money and power. Many people will do anything to obtain it, thinking that's what will bring them happiness. "If I have more money, a bigger house, a better job, I will be happy" we all think at some point. And without these motivations and rewards, many people wouldn't even consider helping a loved one, let alone a stranger. And that's what's wrong with this world. Most of the wrong in this world is not something someones God is doing to us, we are doing it to each other.<br />
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I often get asked what I received in return for helping Pieter. I received a truly grateful, happy, healthy and amazing life-long friend. And that is more valuable than any possesion this world has to offer.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-87507303508265931872013-02-01T08:00:00.000+00:002013-02-01T08:00:16.235+00:00The road less travelled...<iframe allowfullscreen="" frameborder="0" height="315" src="http://www.youtube.com/embed/l-gQLqv9f4o" width="535"></iframe>Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-18231983924117087702013-01-30T08:00:00.000+00:002013-01-30T19:41:39.887+00:00Advice for potential living donorsThey say there is no better teacher than experience. So through my own experience of being a living kidney donor, I'll share some important tips should you consider becoming a living donor too.<br />
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Most importantly: do your research and find out as much as possible about the benefits, process, procedure and risks as you can. There is a lot of information available on the internet, where I found most of mine. You can also speak to the Renal Co-ordinator at a hospital. Below are links to a few very useful sites:<br />
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<a href="http://www.organdonation.nhs.uk/how_to_become_a_donor/living_kidney_donation/" target="_blank">http://www.organdonation.nhs.uk/how_to_become_a_donor/living_kidney_donation/</a><br />
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<a href="http://www.uhb.nhs.uk/living-kidney-donors.htm" target="_blank">http://www.uhb.nhs.uk/living-kidney-donors.htm</a><br />
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<a href="http://www.giveakidney.org/" target="_blank">http://www.giveakidney.org</a><br />
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What helped me in my decision to make the donation was reading all the success stories of other donors. There are more than a hundred personal stories to be found here:<br />
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<a href="http://www.livingdonorsonline.org/experiences/experiences.htm" target="_blank">http://www.livingdonorsonline.org/experiences/experiences.htm</a><br />
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<u>Before hospitalisation:</u><br />
<ul>
<li>Ensure that you are as healthy and fit as possible with a healthy diet and physical exercise. The better shape you are in before the operation, the faster your recovery time will be and the smaller the risk of complications.</li>
<li>Minimise your daily stress as best you can. Stress is bad for your body and state of mind. Being overloaded by work before I left on sick leave with the fear of a very large operation caused me two weeks of agonising tension headaches. Try to stop working a week before the operation if possible. It's also best not to think about the "what ifs" during this time, as it can also cause stress.</li>
<li>If you haven't already, update your will and ensure you have sufficient life insurance. It's not nice to think about, but there is a 1 in 3000 mortality rate for living donors. Telling your life insurance provider before the operation of your intention will ensure that you are covered during the operation, and for any event that may cause your death as a result of the donation.</li>
<li>Pack a trolley suitcase with comfortable clothes, underwear and toiletries. I took Crocs shoes to walk around with because they are comfortable to walk in on the cold hospital floors, and you can shower in them. The main cut which is about 12cm long is about 3cm below the belly button, which is right on the belt line for most trousers/skirts. Make sure you wear tracksuit trousers on the day of discharge as the cut will be very sensitive.</li>
<li>Take something with you to keep you occupied as you will be in bed for 3-6 days. Books, music and movies on a tablet or smartphone are a great way to pass time. </li>
<li>Take earplugs and eye flaps to block light and noise. There is normally activity in and around the ward all throughout the night.</li>
<li>Have a very light meals the day before the operation, I can't stress this enough. The operation will cause your digestive system to go to sleep for a day or two, and any food left in there will remain in there until your first bowel movement. You don't want that to be a something spicy, trust me!</li>
</ul>
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<u>At the hospital:</u><br />
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<ul>
<li>Stay positive and focussed on what you are there to do. You will constantly be surrounded by sick people, loud machines and staff which can add to your stress levels.</li>
<li>Be insistent. There are only a few nurses and doctors attending to many patients, and you can easily be forgotten about. I waited from 3pm to 10pm the night before the operation for my chest x-ray before making a fuss, and had to go to the Emergency Room x-ray department as the local one was already unmanned, and only got to bed at around midnight.</li>
<li>Ask questions. Nurses and doctors may give you injections and medication without explaining what they are and their side effects. If you're not happy with it, ask for an alternative. I remember being given pain tablet that only days later I was told contributed to my nausea!</li>
<li>Go easy on the morphine if you haven't had it before. As I mentioned previously, I had a bad reaction to it and the anaesthesia, causing severe nausea, shivers and sweats. Only use it when you start feeling discomfort.</li>
<li>Since childhood my mom has always given me Ginger Ale to drink for nausea. Peppermint is also very good. Take some peppermint lozenges with and keep them in your bedside drawer. They are also very handy for the days when you don't get up to brush your teeth.</li>
<li>As uncomfortable as it is, try to get out of bed and walking the day after the operation. This will wake up your digestive system. The sooner you can pass urine, the sooner you will have the catheter removed. You will not be discharged before you have a bowel movement! Because I couldn't eat or drink for two days due to the nausea, I had to stay in hospital for an extra two days.</li>
<li>Try not to lie in one position for too long. Being in bed for about 20 hours a day takes its toll on the back and muscles, and you can easily develop bed sores. Even if you can't stand upright, try to sit upright in the bedside chair.</li>
<li>Put your hand on your cut and apply light pressure before coughing and sneezing. The will minimise the pain.</li>
<li>Drink plenty of water to ensure you are passing enough urine - this is vital to monitor the function of your bladder and remaining kidney. Otherwise you will be connected to a drip to keep you hydrated.</li>
</ul>
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<u>At home:</u></div>
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<ul>
<li>Get as much rest as you can during the first few weeks after the operation. Your body will be working hard at healing the cuts and adjusting to the single kidney, using up all your energy. </li>
<li>You may not feel like it, but try to eat healthy, high-energy foods to give your body the energy it needs.</li>
<li>Drink plenty of fluids, preferably water, and no caffeine or artificial sweeteners.</li>
<li>Bend with your knees, not your back when bending over. Avoid any strain on those scars.</li>
<li>Take showers, not baths until the scars are closed and healed. Cover them with waterproof plasters to keep the water from softening the skin which may cause tears.</li>
<li>Don't strain yourself by lifting heavy items or doing too much exercise. Those orders were given by the doctor for a good reason. Take it slow and be patient. It takes time for the body to heal and adjust.</li>
<li>Keep hourly track of what you eat, drink and the medication you take. This will help you keep an eye on your fluid intake, and help it figure out what medication gives you any side effects.</li>
</ul>
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If after reading all this and you're still motivated to go through with it, I'm very proud of you. It's tough, both physically and mentally, but only for a short time. After a few months you will be back to your old health and radiate with pride and love for what you've just done. Someone at work told me last week that I look different, that it looks like there is a halo around my head. I do feel different. I feel like I have finally done something really amazing with my life, made a difference, on a human scale. It makes the strive for success and the gaining of wealth feel almost feeble. As a society we are brainwashed to join the rat race and climb the corporate ladder at any cost, and we become blind to the needy, the poor, and the sick among us.</div>
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Keep focussed on the life you are saving, there is no greater motivator. Your altruism will echo through all eternity.</div>
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-52975565230551595422013-01-26T16:18:00.000+00:002013-01-28T15:40:52.663+00:00Medal of HonourI was pleasantly surprised when I received an envelope from NHS Blood and Transplant in the post this morning. Inside was a beautiful letter of thanks for my kidney donation by Chief Executive Lynda Hamlyn, and a blue box containing a silver pendant.<br />
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Thank you NHS for the kind gesture, I'll wear my medal of honour with pride.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-40161633616113384862013-01-08T12:32:00.000+00:002013-01-19T12:43:29.124+00:00My 6-weeks check-upMy 6-week post-operation check-up was due today. However on Wednesday 02 January I bent over slightly and felt a sharp pain in my large scar in my stomach. I looked down and saw that it had opened up in the corner by about 1cm. The next morning after a shower I noticed some redness and yellow fluid in the opening. I didn't want to take any chances at this early stage so I went to the hospital to have it looked at.<br />
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I was seen by Ray Trevit, who told me it didn't look too serious and it could be that an internal stitch may have pierced the scar and caused the inflammation and tear. Just to be on the safe side Ray took a swap of the fluid for testing for an infection. Whilst I was there Ray also took my blood pressure, urine sample and some blood, which was going to be done today. I was told to keep the scar clean and keep Ray updated.<br />
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The following morning after a shower I noticed the tear looked slightly purple! I gave it a bit of a squeeze (as you do!) and something purple came to the surface! I grabbed a tweezer and pulled on it, and out came a large piece of undissolved stitch! A few weeks ago one of the keyhole scars wouldn't heal, every morning I noticed that it had opened up again. One morning I saw a tiny piece of stitching stick out, and pulled out a similar undissolved stitch, only this one was clear, so I was relieved because I knew that was what caused the tear in the large scar. Over the next few days it closed up again.<br />
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I received my test results today. Ray was very happy with the results and so was I. Every test came back normal, my kidney function is good at 62% (It was 82% before the operation with 2 kidneys), creatinine level is 117 which is normal for my size, age and single kidney, blood pressure is normal, and the swap for the infection came back negative. We discussed my health and recovery and I mentioned that I felt fine and almost as good as before the operation. I only have some discomfort from the internal stitches that still have to dissolve fully and the tissue to mend and the swelling to dissipate, and my energy levels are still a bit low. So I was told to rest for a few more days and only return to work on Monday 14 January 2013. I now only need to return for a check-up once every year.<br />
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With the worst now behind me and my recovery almost complete, it feels great knowing what I did for Pieter and seeing him also recovering so well. I won't lie to you, it was a tough few weeks both physically and mentally. But it's only for a few weeks, soon it will all be a distant memory. But for Pieter it means a normal, healthy life.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-37964779240683669232013-01-01T15:02:00.000+00:002013-01-01T15:04:29.247+00:00Happy New Year!!As amazing as 2012 was for Pieter and I, 2013 will be the one to keep a close eye on this blog!<br />
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Follow Pieter's progress as he gets healthier and stronger. I can't wait to see what he gets up to this year will all his new energy, health, time and determination!<br />
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Here's to wishing you all a happy, healthy and prosperous year! Thank you all for following our blog and your support.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-63027574711282013932012-12-25T06:00:00.000+00:002012-12-24T12:43:02.506+00:00Merry Christmas everyone!We would like to say a huge thank you to all our family, friends and colleagues for all your love and support the last few months. Also to all the staff at the Royal London Hospital for the amazing work you have done for us to give Pieter a normal life, and for all the other lives you help make better.<br />
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Merry Christmas!<br />
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Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-20045730197130543192012-12-07T20:00:00.000+00:002012-12-09T20:09:04.542+00:00My first check-upThe donor's first check-up is usually a week after the operation, but because I was feeling poorly for the first, week I wanted to wait until I was well enough to make the 90 minute journey to the hospital by train. So I went back ten days after the operation. Natasja came with to make sure I was okay and to keep me company. She even kept some food, sweets and water in her handbag just in case I needed it.<br />
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When I arrived at the hospital I checked-in at reception and asked for Sister Lilly, who in turn referred me to Dr. Hector, the surgeon who looked after Pieter. He had a look at the wounds and took my blood pressure, and was very satisfied with my progress, saying everything look extremely good. He told me again how proud he was of me for my sacrifice, by not only saving Pieter's life, but also prolonging it. It's was so nice to hear how much Dr. Hector cared for the health and well being of Pieter, and that he understands everything that the donor goes through to make such a sacrifice. I reiterated again how grateful I am for being in a position to make such a donation to Pieter, and that I would gladly do it again. He also felt that now that we've paved the way for <a href="http://www.twoguysonekidney.blogspot.co.uk/2012/12/we-made-uk-history.html" target="_blank">Directed Altruistic Donations</a>, more living donors may come forward.<br />
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After my check-up Natasja and I visited Pieter, Lizelle and mom Marietjie. Lizelle was kind enough to drive us to and from the station as by then it was freezing cold and I had done more walking than I should have in one day.<br />
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It was amazing to see the transformation in Pieter in only a week since I last saw him! His skin colour was back to normal, he looked healthy and energised, like he just returned from holiday! It brought tears to my eyes. They were all so happy and in such good spirit, which was wonderful to see.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com1tag:blogger.com,1999:blog-2880559718944067226.post-33094108187251419682012-12-05T12:09:00.000+00:002012-12-06T12:11:57.016+00:00One week after the operationThe first few days after the operation felt like a lifetime while I was struggling with the sickness caused by my bad reaction to the anaesthesia, morphine and pain medicine. I had never felt so sick and weak for so long.<br />
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This was largely due to the fact that I was constantly encouraged by doctors, nurses and patients to use the kindly supplied morphine button as often as they allowed it, which was every 5 minutes. With every press of the button a small dose of morphine was injected into my arm. So for the times on the day of the operation that I was awake, and during that night when I awoke, I pressed that button. On top of that I was given oral pain medication every 6 hours too. In hindsight it was obviously too much for my system to handle, and I probably didn't need that much as I wasn't in that much pain. The aim seemed to be to stop the pain from starting instead of relieving it as and when it started. My advice to anyone else would be to use it only when needed if your tolerance for pain is higher than that of sickness and nausea.<br />
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Thankfully exactly a week after the operation all the pain medication is out of my system, the sickness and nausea is completely gone, my appetite is back, and my digestion system is back to how it was before the operation.<br />
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I was told by my surgeon that the intestines don't like being touched or moved. They apparently react by going into a sleep mode. This coupled with the gasses created by the anaesthesia make for a very uncomfortable stomach, especially when you are forced to eat all your meals and drink as much fluid as possible. For this reason the doctors force you to get out of bed and start walking as soon as the next day after the operation. This helps the intestines move and re-align to a new comfortable position, and to kickstart it back into action. Mine wasn't so co-operative so I was given some laxatives, not great if you find it difficult to move anywhere fast, but it certainly brought some relief.<br />
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Now that the internals are working well again, I'm looking forward to the wounds healing so that I can have my movement and flexibility back to normal. I'm not allowed to bend down too far or lift anything heavier that 2kg for 4 weeks. I went for a few walks during the day but with Winter well and truly here and temperatures not much higher than freezing during the day, I decided to give the elliptical cross-trainer a go this morning. It went better than expected and I managed a whole 2 minutes all the while staying warm and comfortable inside.<br />
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I'm extremely grateful for making such a speedy recovery, it certainly helps to have a positive frame of mind and so much love and support. Thanks to each and every one of you.Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com1tag:blogger.com,1999:blog-2880559718944067226.post-1154038892401357902012-12-03T17:42:00.000+00:002012-12-05T18:06:06.892+00:00We made UK history!On the 27th of November not only did I hear that the transplant operation was a success, but also that it was the first of it's kind the United Kingdom!<br />
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According to the Human Tissue Authority (HTA)'s Code of Conduct (which can be found <a href="http://www.hta.gov.uk/legislationpoliciesandcodesofpractice/codesofpractice/code2donationoforgans.cfm?FaArea1=customwidgets.content_view_1&cit_id=673&cit_parent_cit_id=669" target="_blank">here</a>), and is summarised below, there are two basic types of living organ donation:<br />
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<blockquote class="tr_bq">
Types of living organ donation:<br />
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1. <b>Directed donation</b>: A form of donation where a healthy person donates an organ (usually a kidney) or part organ (for example liver or lung lobe) to a specific recipient. The recipient could be known to the donor (in the case of genetically or emotionally related donation) or unknown to the donor (in the case of paired donation).<br />
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<li>genetically related donation: where the potential donor is a blood relative of the potential recipient</li>
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<li>emotionally related donation: where the potential donor has a relationship with the potential recipient, for example, spouse, partner, or close friend</li>
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<li>paired donation: where a relative, friend or partner is fit and able to donate an organ but is incompatible with the potential recipient, and they are matched with another donor and recipient in a similar situation, so that both people in need of a transplant receive a compatible organ</li>
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<li>pooled donation: a form of paired donation whereby the pair are matched with other donors and recipients from a pool of pairs in similar situations, and more than two donors and two recipients are involved in the swap, so that more than two people in need of a transplant receive a compatible organ</li>
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2. <b>Altruistic non-directed donation</b>: A form of living donation whereby an organ (usually a kidney) or part organ (for example liver or lung lobe) is donated by a healthy person who does not have a relationship with the recipient and who is not informed whom the recipient will be.</blockquote>
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Seeing as I had only met Pieter twice before offering to donate my kidney to him, I technically did not have a relationship with him therefor it could not be a Directed donation. It could also not be an Altruistic non-directed donation seeing as we do know each other. What swayed the HTA was the fact that we had grown to become very good friends in the 3 months of tests and built an emotional relationship. On this basis it was approved as a Directed Altruistic donation.<br />
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A situation like this has never occurred in the UK, and was not allowed by the HTA until now, because it's would encourage the unlawful sale of organs. Thankfully they saw the sincerity of my donation and approved it, making my Directed Altruistic donation the first of it's kind in the UK!<br />
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Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-44863540094683845402012-12-01T19:48:00.000+00:002012-12-04T08:27:41.625+00:00Post-operationDuring the night after the operation all the drugs and painkillers were taking their toll. I had really strange and upsetting dreams about the operation and complications as a result of it, but I wasn't able to tell the difference between the dreams and reality. What made it even more stressful, was that just about every hour there was a doctor or nurse waking me up, wanting to check my vitals, my wounds, ask me questions, take blood, give injections etc. etc. I knew they were all concerned for my well-being but I really felt like chasing them away at least during the night so I could just rest.<br />
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The day after the operation I woke up, saw a doctor by my bed and immediately asked how I was doing after the strange dreams. He told me not to worry, that everything was good, and to stay positive. What a relief! I immediately felt great, and just wanted to get out of bed to go visit Pieter. Unfortunately with so much staff, and each person doing only one task, by the time my vitals were checked again it was mid-day.<br />
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Getting out of bed wasn't as bad as I thought, and my body and neck & shoulders were more sore from lying down for too long, than my wounds. I was helped into a chair beside my bed, where I sat for a few minutes to gather my strength, when Natasja helped me up to take the short walk down the corridor to my dear friend Pieter.<br />
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When Pieter and I saw each other, we couldn't help but smile with a huge sense of relief that it was finally over, and that it had gone so well.<br />
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Pieter and his family were in such good spirit, it gave me goosebumps, and made me feel incredibly honoured to have done this for him. He told me how even though he felt ill from all the medication, he could feel this amazing energy inside of him, and could already feel the transformation happening. Small things that we take for granted like a smooth, soft, oily skin, he only just started experiencing again!<br />
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We all sat there talking about this wonderful miracle that just happened with huge gratitude to everyone involved.<br />
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Unfortunately within minutes I was starting to feel quite ill. I said my goodbyes to everyone and returned to my bed. For the next three days I had a very bad reaction to the combination of anaesthesia, morphine and painkillers. I felt nauseous, weak and feverish. That coupled with all the hourly tests, being overloaded with saline and glucose through a drip, being forced to eat and drink at every meal, forced to get up and walk as much as possible, and forced to go to the toilet and release my bladder and bowels regularly, really took it's toll on me and I had never felt so poorly in all my life.<br />
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My aim was to go home on Thursday, but there was no way. I could barely speak. Thankfully Natasja, Lizelle and Marietjie took turns to be by my side, encouraging me to get better and stay positive. More friends of Pieter kept stopping by to wish me a speedy recovery.<br />
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By Friday I had a huge conversation with myself, and told myself that I had to beat this thing if I wanted to get out of there to the peace and comfort of my house, with only my amazing Natasja to take care of me. Then I remembered my mom always giving us ginger ale to drink for nausea, and I asked Natasja to bring me some. And what I difference that made! I was gradually beginning to feel better that day and started eating again, and by the evening everyone was saying I looked like the old John. What a relief! On Friday afternoon Lizelle brought me some South African Biltong (Beef Jerkey) and Fanta Grape soda. It's something I grew up with in South Africa, and brought back so many fond memories that it boosted my energy and made me feel so much better. So much in fact that I decided come hell or high water, I would go home on Saturday.<br />
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When Saturday finally came, I was up at 06:00 and felt so much better. I had a wash, walked over to Pieter, had a nice conversation with him, and when I bumped into my doctor told him I was going home, no questions asked. He was very happy to see my progress and ordered one final round of tests before I got the all-clear. I was so positive that I told Natasja to come to the hospital earlier to help me pack as I was coming home! With all the paperwork, medication and transport finally arranged by 13:00, I said my goodbyes again to Pieter and his family, and I was finally and literally on my way home to a speedier recovery!<br />
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The hour cab ride home was quite painful and uncomfortable, but all worth it when I walked into my house, and received a huge hug from Natasja. She made me sit on the sofa, wrapped me up in a blanket and made me a nice cup of tea! I was so happy I could literally cry.<br />
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For someone who is always healthy and fit to go through such a huge operation took a greater toll that I could've imagined, both physically and mentally. I am grateful to infinity for all the support I have received, and for my lovely Natasja who has been at my beck and call every second of the day, never getting tired or irritated, even on my toilet runs during the early hours!<br />
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But from day one I told myself that even if that type of discomfort and pain lasted a few weeks, it would be nothing compared to what Pieter had gone through over the last few year, and still be worth every minute.<br />
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There are no words that can describe the joy that I feel for helping my friend, nor for the incredible bond this has forged between us. You are a true hero and inspiration to me and many others Pieter, for never letting your health get you down, and for staying positive and fighting through all the illness and symptoms for so many years.<br />
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Here's to seeing you healthy and happy well into your twilight years.Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com5tag:blogger.com,1999:blog-2880559718944067226.post-34346723513375718782012-11-27T16:49:00.000+00:002012-12-03T20:12:21.341+00:00The OperationI was woken up at 06:00, and had my heart rate, blood pressure and oxygen levels measured. The saline drip that I was attached to during the night to hydrate me was removed and I was asked to take a quick shower and to return to my bed in only my hospital robe.<br />
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The next two hours was a sensory overload. I had so many nurses and doctors asking me procedural and medical questions, had more blood taken, and more injections I can't even remember what for anymore.<br />
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The reality of it all was starting to set in. I never hesitated for a moment, but I was definitely anxious to have my first operation done. I was so happy to have Natasja, Pieter, Lizelle and Pieter's Mom, Marietjie by my side. They tried their best to keep me calm and positive, and it certainly helped. And knowing that I had my family, friends and colleagues wishing me all the best gave me great comfort.<br />
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Just before I was wheeled off to surgery I had to endure another 40 minutes of pain for the trial experiment. At least it made me focus on something different than what was about to happen. There were so many people around my bed by now, including Ray, Lilly, a few doctors and nurses. I felt really well taken care off and in extremely good hands.<br />
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The big moment we've been waiting for 4 months finally happened. I was wheeled off to the surgery theatre, to be held in a waiting area. I remember Natasja, Pieter, Lizelle and Pieter's Mom gathering in the hall and I gave them a round of high-fives. Lilly was so kind she waited in the waiting area with me for about 30 minutes, keeping me company while the theatre was readied. We said our goodbyes and I was taken to a small room adjoining the theatre where I was met by the Anaesthesiologist and an assistant. She again asked me many health and medical question such as allergies, previous reactions to anaesthesia etc. I was asked if I had any questions, and all I could muster was: "Be gentle, and don't let me wake up during the operation." She snickered and promised.<br />
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When done, she gave me an injection, supposedly 1 of 3, and an oxygen mask was placed over my face to "help me relax and breath better". Thanks doctor I heard all these tricks before I thought, waiting for injection no. 2.... Well I don't know if it ever came, and the next thing I remember is waking up in the recovery room.<br />
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It felt like I had woken from a very deep sleep, very disorientated, but no pain which was a relief. I was told that the operation was a success and had gone extremely well. I was so happy and relieved it was over. For me anyway. I thought about Pieter, saying a quick prayer for him, and dozed off.<br />
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The rest of the day was just one big blur as I slept most of the time, and when I woke there were always very happy and relieved faces staring back at me. Natasja told me at some point that Pieter's operation also went extremely well. The surgeon called it a "beautiful kidney", and it started working almost immediately!<br />
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With all this good news I decided to call it a night and let the morphine do it's work, while I started my healing process.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-30137877443901615862012-11-26T22:24:00.001+00:002012-12-03T15:42:52.242+00:00Pre-operationWith nervous anticipation Natasja and I made our way to the hospital this morning. It felt so surreal sitting there on the train, thinking tomorrow is the big day we've been looking forward to for so many months. <br />
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When we arrived at Ward 9F of the Renal Unit at 11:30 I was told they were waiting for a bed to become available as they are full. We were told we could go visit Pieter in the meantime. When we got to his bed Lizelle and his mom Marietjie were there. It was so nice to see them all and especially to meet Marietjie in person. Until now we had only talked through emails. She is the same lovely, kindhearted and caring person I had imagined from her emails. She jumped up and gave me the biggest hug and started crying with happiness and grattitude. I was so touched by her emotions and again realised what this means to Pieter, his family and friends. It's such an amazing ability to bring happiness and hope back to these wonderful people. And to now be a part of the wonderful family. <br />
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As we sat there casually talking and getting to know Marietjie, Sister Lilly came to say hello. It's always nice to see her. She explained to us that we will have some blood taken, chest X-rays taken and an ECG done during the course of the day. <br />
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We also opted to volunteer for a trial experiment during which they restrict the blood flow from one arm for 5 minutes and release it for 5 minutes, which is done 4 times. This apparently forces the body to release a chemical aimed at protecting the arm from a perceived trauma. These chemicals in turn protect the major organs too, keeping it safe during the transplant process. This will be done once again in the morning before the operation. <br />
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At 15:00 my bed was finally ready in the room next to Pieter's. Natasja kindly unpacked my suitcase while nurse Jacky took my blood pressure, measured my weight etc. and checked my medical background. When this was done Natasja, Lizelle and Marietjie went home, leaving Pieter and I to sit and reflect on this huge miracle which has finally come to reality. <br />
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Pieter left for his very last dialysis at about 18:00, and I received my dinner shortly after. There is a nice selection of food, and I opted for Cornish pie with sweetcorn and mash, and a toffee yoghurt for dessert. Before I was able to start my dinner my surgeon, Dr Roberto Cacciola arrived to run the procedure by me again and for me to sign a consent form. He was again very kind and helpful and I'm very pleased that he will be performing my operation. <br />
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An hour later another doctor came to do a quick check-up with some medical history questions. After that I was sent to the X-ray department for my chest X-rays. <br />
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At 22:00 I finally had my ECG. Now I can finally get a good night's sleep before the operation. I have to get up at 06:00 to shower, get prepped, arm pressure experiment, see my loved ones, and get wheeled off for the operation at 08:00. <br />
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I would like to thank my amazing wife Natasja for all her love and support, she is my rock, and without her it would've been a much harder path. Also to my family, friends and colleagues who have supported me in my decision from day one. You are all amazing. And off course to Pieter, Lizelle, his family and friends for all their love, advice and kind words. <br />
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I know this transplant will go amazingly well and that Pieter and I will live full, healthy lives. I'll be doing a post operation post soon!<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com6tag:blogger.com,1999:blog-2880559718944067226.post-42481564857062771322012-11-13T23:00:00.001+00:002012-11-14T00:30:46.066+00:00The boy and the starfish<br />
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Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com1tag:blogger.com,1999:blog-2880559718944067226.post-82112396832575251282012-11-12T22:33:00.000+00:002012-11-12T22:36:57.870+00:00Final blood tests before the operationsThis morning Pieter and I had to go to hospital for what we hope were the last blood tests before our operations. They want to do a final cross-match test to make sure everything is still perfect, and I assume a few other tests judging by the 12 tubes of blood they took from each of us! Usually it's only 6-7!<br />
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When we arrived we were met by Ray Trevitt, who took us to his office. We had an informal chat with Ray about the upcoming operations, and he gave us some paperwork containing what to do/ expect before, during and after the operations.<br />
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We were also asked to give <a href="http://www.nhs.uk/conditions/MRSA/Pages/Introduction.aspx" target="_blank">MRSA</a> swabs to make sure we don't carry the disease. One from the nose, another from the back of the throat, and finally as Ray put it: "Any dark crevice between your legs". Say no more.<br />
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After our meeting with Ray we had our blood taken. Strangely enough I'm getting used to it, as long as I look the other way that is! But the nurse was so good that I hardly felt a thing. Poor Pieter was a little shaky before he even arrived, as the last dialysis he had was on Friday, so to give so much blood really takes its toll on him. But with Pieter being Pieter, he shook it off and carried on. What an amazing person. It just makes every other problem I have that I think is big seem insignificant.<br />
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Ray then took us for a tour through the Ward where we will be staying in a fortnight. It was all new, modern and clean, with wide corridors and large rooms. For the past two weeks I've been very tense and anxious over the operation, largely due to the fear of the unknown. But after seeing this I feel much more at ease. Especially seeing how friendly the staff are and how well patients were treated.<br />
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Tired, hungry and a little light headed we decided to have something to eat and drink in the hospital restaurant. Wow! We were both pleasantly surprised at how nice it was! It's so modern, bright and spacious, with a great selection of food and drinks, and such a nice atmosphere. We immediately looked at each other and said Natasja and Lizelle would love this place while waiting during our operations. We had another great chat, contemplating the before and afters, and agreed this is such a blessing and amazing event unfolding.<br />
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We both need to stay fit and healthy before and after the operations, which means we have to avoid public transport and unnecessary contact with strangers. So the next time we'll see each other will be on Monday 26 November, the day before the operation, when I will check-in, so to speak. Pieter needs to be there on Sunday 25 November as there will be a few more tests to be done on him. So until then we just have to wait patiently and calm the nerves.<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com9tag:blogger.com,1999:blog-2880559718944067226.post-27501854493187543472012-11-08T08:42:00.001+00:002012-11-08T08:42:26.460+00:00A huge thank youI would like to say a huge thank you to the management of <a href="http://www.prparchitects.co.uk/" target="_blank">PRP Architects</a> for all their support and understanding over the past few months while I underwent all the compatibility test, and for letting me take the recovery time after the operation as company sick leave, even though it's a voluntary operation. Thanks also to my colleagues for your support and comfort, it means so much to me.<br />
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PRP are always supporting charities and those that contribute to them, setting a great example for others.Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-2807262496098045922012-10-13T15:23:00.000+01:002012-10-13T15:23:01.789+01:00Organ donation survey reveals shocking resultsBelow is a very interesting yet shocking article from <a href="http://www.kidneyresearchuk.org/">www.kidneyresearchuk.org</a>;<br />
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<span style="background-color: white;">Kidney Research UK has raised serious concerns about public attitudes towards organ donation, after a survey revealed the majority of people in the UK are prepared to receive an organ but not donate one.</span></div>
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<span style="background-color: white;">Results from the survey, carried out by Usurv, indicate that while 87 per cent of people in the UK would accept a transplant if told they needed one, only one in three are actually on the organ donor register.</span></div>
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<span style="background-color: white;">Around 50,000 people in the UK require some form of ongoing treatment for kidney failure, of which aproximately 7,000 are currently waiting for a kidney transplant – accounting for 90 per cent of all patients on the NHS’s transplant waiting list.</span></div>
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<span style="background-color: white;">With more than three million people in the UK at risk from kidney disease and an aging population expected to further increase demand for donor organs in years to come, Kidney Research UK fears demand for organs will continue to outstrip supply – placing the lives of more and more kidney patients at risk.</span></div>
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<span style="background-color: white;">Professor Tim Goodship, Chairman of Kidney Research UK, said: “The on-going shortage of organ donors in the UK is a problem which is acutely felt by renal patients.</span></div>
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<span style="background-color: white;">“In light of the results from this survey, we would ask people to give greater consideration to joining the organ donor register. Your organs are of no use to you when you die but could very well save someone else’s life.</span></div>
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<span style="background-color: white;">“Imagine yourself in a situation where you’ve been told by doctors you have kidney failure and face the prospect of a lifetime on dialysis or even death unless you receive a transplant. Ask yourself, ‘would I accept an organ?’ If the answer is ‘yes’, we would urge you to think about becoming a donor, as this is the very real scenario endured by thousands of kidney patients in the UK every single day.”</span></div>
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<span style="background-color: white;">Although more than 18 million people have signed the UK’s organ donor register, only around 2,700 kidney transplants are carried out annually.</span></div>
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<span style="background-color: white;">Even those kidney patients lucky enough to receive a transplant aren’t cured of their condition, as a transplanted kidney only lasts around 10 to 15 years – meaning patients often require multiple transplants in a lifetime and adding to the demand for organs.</span></div>
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<span style="background-color: white;">Katherine Hall was just eight years old when she was dignosed with kidney disease. Now 30, Katherine is in need of a third transplant but, due to high levels of antibodies in her blood, has only a seven per cent chance of receiving another organ.</span></div>
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<span style="background-color: white;">“When my parents were told I had kidney failure it came as a complete surprise,” explained Katherine. “Doctors originally thought I was anaemic and by the time they realised it was actually a renal problem my kidneys had stopped functioning completely.</span></div>
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<span style="background-color: white;">“Since being diagnosed I’ve had two transplants – one which lasted about ten years and another which failed after just 18 months. The antibodies I’ve been left with make it very difficult for doctors to match me up with another donor.</span></div>
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<span style="background-color: white;">“If there were more organ donors in the UK I’d have a better chance of getting another kidney, and I’d urge anyone who isn’t already on the organ donor register to sign up. It means so, so much to people like me.”</span></div>
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<span style="background-color: white;">A third question on the survey focused on people’s views around introducing a system of presumed consent for organ donation, where individuals would have to opt-out of becoming organ donors, rather than signing the register.</span></div>
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<span style="background-color: white;">When asked whether they would support the introduction of an opt-out approach to organ donation in England, more than half of those polled (54 per cent) said yes, while only 18 per cent said no and 27 per cent were not sure.</span></div>
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<span style="background-color: white;">“The introduction of an opt-out approach to organ donation is a move that would be welcomed by Kidney Research UK and something we have long campaigned for,” added Professor Goodship.</span></div>
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<span style="background-color: white;">“We also need to improve the infrastructure in our hospitals to better accommodate organ donors and increase funding for research aimed at making kidney transplants work better for longer.</span></div>
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<span style="background-color: white;">“Finally, it’s imperative that people who are registered donors under the current system discuss their wishes with their loved ones, as the family will always have the final say on whether an individual’s organs are taken after death.”</span></div>
Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-5813040737521678582012-09-28T16:16:00.001+01:002012-09-28T16:39:18.586+01:00HTA MeetingShortly after our meeting with the surgeon, we had our meeting with Dr. Matthew Buckland, the Independant Consultant for the Human Tissue Authority (HTA).<br />
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I was seen first, then Pieter, then both of us together. The point of the interview was to ensure I knew exactly what I was signing up for, what the risks and procedures are of being a living donor and that I wasn't coerced or reimbursed. I also had to provide my passport as proof if identity. The meeting was very long but thorough, and I'm glad that these checks are in place to keep the process legitimate.<br />
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While Pieter had his interview I typed the previous post and let my family know about the good news. I was too excited to wait!<br />
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After about 40 minutes Matthew returned for me. He told us he was happy with our stories and motivation, but because I offered the donation to Pieter at the very start of our friendship, and the bond grew strong because of it, the donation will be classed as Altruistic instead of friendship. Altruistic kidney donations means to donate to a stranger or to the hospital who then give it to someone on the donors list. <br />
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I don't think this will be an issue, the only difference is that the final decision will be made by a panel of independant consultants, instead of just one. We are confident this will be agreed within a week or two. <br />
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Pieter also had some blood taken to test the level of immune suppressant in his system. This level will determine exactly how long before the operation can take place, and will be discussed in a meeting on Monday 1 Oct. 2012 by the Renal team. <br />
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Apart from the longer than expected wait, we're extremely happy and relieved to have been given the all-clear by the surgeon. <br />
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Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com1tag:blogger.com,1999:blog-2880559718944067226.post-84436196484199901992012-09-28T14:00:00.001+01:002012-09-28T14:51:33.485+01:00It's an anatomical match!!I'm still reeling from the wonderful news as I sit here in the hospital reception room!<br />
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We just had our meeting with the consulting surgeon Dr. Roberto Cacciola about our tests. He was very happy with them and told us Pieter is extremely fortunate to have a non-related living donor with such a good match. He discussed everything with is in fine detail, down to the actual procedure and incisions. <br />
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Long story short, Dr. Roberto showed me die CT scans of my kidneys and was very pleased. He told us that they prefer to remove the left kidney because it has a longer artery and is easier to access. It wonderfully turns out that my left kidney is slightly smaller than the right one by 1.3cm. They will always remove the smaller or weaker one leaving the best one for the donor. My left kidney is connected to my main artery by only one artery, exactly the same as Pieters! Where the one on the right has two. <br />
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This means an easy an smooth operation because there are only these two arteries to connect. It's common to have up to 6 arteries, and connecting those to an odd number is very complicated. <br />
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So all my tests have been concluded and the surgeon is happy to do the operation!!!<br />
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There is one bit of bad news though; he noticed that Pieter is still on anti-rejection medication for his non-functioning kidney, even though his doctor should have told him to stop it once I started my tests. The medication prevents Pieter's body from producing new cells, which means that the new kidney won't be able to attach to his body. He is very upset about it because we were preliminarily scheduled to have the operation at the end of October, and now we have to wait another 3 months. I feel his anguish, but at least we know it will definitely go ahead!<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJTGsy1L-gNhVgrPvLALpF0ODFHfApL_7d8r1ySY3xSF-nC34uh5hzVd2HUlgitCd4mYBYMXRhmZX2UwYeDRO5evfHbdBPqN4XCZA69dIpjbTOyfFnped3MZuUNlhyjNFFxsHFHrlAnyWQ/s640/blogger-image--2006355883.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJTGsy1L-gNhVgrPvLALpF0ODFHfApL_7d8r1ySY3xSF-nC34uh5hzVd2HUlgitCd4mYBYMXRhmZX2UwYeDRO5evfHbdBPqN4XCZA69dIpjbTOyfFnped3MZuUNlhyjNFFxsHFHrlAnyWQ/s640/blogger-image--2006355883.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicQCN9KHQ282QYis_QOmuNzKPp2IB05BaLSlAZa6f17M-tK6j6dnVmTapFrIXA3TTLU3PfhTRAUk-rjRNfyR_FfjJVk-c45KNLQF1ZekvzJ28FTnarZxoU3aODFIISmx_hj2Zm4yQ5x070/s640/blogger-image--943589970.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicQCN9KHQ282QYis_QOmuNzKPp2IB05BaLSlAZa6f17M-tK6j6dnVmTapFrIXA3TTLU3PfhTRAUk-rjRNfyR_FfjJVk-c45KNLQF1ZekvzJ28FTnarZxoU3aODFIISmx_hj2Zm4yQ5x070/s640/blogger-image--943589970.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmIMkz_RFRZs-WeOEDFndaL8tQC37IEVROrFlEmIfCh0wTSuIWwZP6u-pwPoRwixrtAkGONOiRx-RazilS-qLGnhFqww9i2BNsyqYDCovrS-anHwluOheUE-K0ZXLr1cAJk_JEB60hQek/s640/blogger-image--174408605.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmIMkz_RFRZs-WeOEDFndaL8tQC37IEVROrFlEmIfCh0wTSuIWwZP6u-pwPoRwixrtAkGONOiRx-RazilS-qLGnhFqww9i2BNsyqYDCovrS-anHwluOheUE-K0ZXLr1cAJk_JEB60hQek/s640/blogger-image--174408605.jpg" /></a></div>Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com2tag:blogger.com,1999:blog-2880559718944067226.post-88231050248120374362012-09-20T22:33:00.000+01:002012-09-21T22:35:24.172+01:00Nephrologist meeting and CT scanToday both couples had a meeting with the Nephrologist, Ravi Rajakariar to discuss all the test result to date. Our appointment was for 1pm, but we had to wait about an hour to be seen. But at least we had good company!<br />
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In that time Sister Lilly came over to introduce herself to me. We had spoken on the phone may times but never met in person. She wanted to know how we were and how all the tests were going. We told her that we thought things could be done a little faster, and asked if the meeting with the surgeon to discuss the CT scan and the meeting with Human Tissue Authority (HTA) could be scheduled for the following week before I go on holiday for two weeks. She was extremely understanding and went off to make arrangements. She came back in a short while, and confirmed that the meeting with the surgeon will be on Friday 28 September 2012 at 11:30am. She said she would try to arrange the meeting with the HTA for the same day, which would conclude all the tests, meetings and consultations. We will then be booked in for the operation!<br />
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Natasja and I were seen first by Dr. Ravi to discuss my results to date. The meeting was very informal, and over in about ten minutes. Dr. Ravi told us what we already knew, that all the tests results were good. It's the best possible news we could have hoped for! What are the odds that two strangers match so well? Then there was a quick routine checkup and medical questionnaire just to tick a few boxes, and we were done! It was a bit of an anti-climax as we thought it was going to be a in-depth meeting to discuss every aspect of the transplant, but excellent news nevertheless. We already know all there is to know about kidney donation due to all the research I did before deciding to donate a kidney to Pieter.<br />
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While Pieter and Lizelle went for their meeting, Natasja and I made our way down to the 1st floor Imaging Department for my <a href="http://www.radiologyinfo.org/en/info.cfm?pg=angioct" target="_blank">CT scan</a>. It was so comforting to have Natasja with me and for her to see the hospital as well.<br />
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The purpose of the <a href="http://www.radiologyinfo.org/en/info.cfm?pg=angioct" target="_blank">CT Scan</a> is to get a detailed look at the size, shape and health of my kidneys, as well as how they are connected to the arteries and veins. The less arteries that connect to the kidney, the easier the transplant will be. We know that Pieter has one large artery connecting his kidney, so the best scenario will be if mine is exactly the same. This is what we are hoping for.<br />
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After checking in at reception and waiting some time, I was called in by a very friendly technician named Neil. Neil took me down the corridor to the preparation room. It was quite daunting because I didn't really know what to expect, but Neil explained the procedure that was to follow which put my mind at ease. He asked me some questions about my health and allergies, and I had to sign a form to confirm everything we discussed. Neil then started prepping me by inserted a canular into my arm into which the dye would be pumped later. He told me that it was quite a long needle so he needed a good vein. It was at that point that I decided not to look at it while he inserted it!<br />
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Once inserted, Neil directed me to the waiting area, where I had to drink 3 glasses of water to help circulate the dye through my system. I waited a good 15 minutes before I was called in as there was someone being scanned. I was greeted by a very friendly nurse who asked me to confirm my name and date of birth. I had to remove all metal objects, and lie down on the bed. I also had to pull down my trousers to my knees, with my privates covered by the nurse with a towel. Shame on you nurse for sneaking a peek and thinking I didn't notice!<br />
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Above is a generic photo of a CT scanner, I didn't get to take a photo. I had to lie on the table with my arms raised above my head, hold my breath, and the scanner passed over my abdomen to take the first scan. Then the nurse came to attach the tube to my arm which was used to inject the dye. I was asked if I was allergic to Iodine, but I didn't know. So I was told to wave my arm if I felt any pain or discomfort as it went into my bloodstream. Fortunately it was fine, and all I felt was a warm sensation as it passed through my body. She disappeared into the control room again, and I was told to hold my breath while the scanner passed over me. This happened 3 times. I had to lie there for 5 minutes while they analysed the images, after which they decided to do one more for good measure. The nurse then told me we were done, and I could pull up my trousers. This time I made sure there was no room for peeking! She removed the canular from my arm, stuck a plaster on the hole, and I was released.</div>
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Natasja was relieved to see me as she was told it took 10 minutes, and I was gone for 45 minutes. They obviously didn't take all the preparation into account. We went up to the second floor imaging department to meet up with Pieter and Lizelle, and Pieter finished with his X-rays as we arrived. </div>
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Ravenous from not eating all afternoon we went to the Spur restaurant at the O2 Arena in North Greenwich for dinner. To our delight we were told that there was an "Eat all you can" special on ribs and chicken wings - just what we needed! And what a wonderful way to end another day of test; great food and great conversation. We talked for hours about how far we had come in the past 3 months, and all the wonderful times that lie ahead.</div>
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com1tag:blogger.com,1999:blog-2880559718944067226.post-73912328959472696542012-08-28T20:45:00.002+01:002012-08-29T00:11:09.390+01:00Kidney function passed with distinction!It's been exactly a week since my kidney function tests, so I phoned the hospital at 09:05 as not to seem too eager. To my surprise Sister Lilly answered the phone, who has been on sick leave ever since my very first telephone conversation about the proposed donation. Welcome back Lilly!<br />
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Lilly didn't have the results at hand, but phoned me about an hour later to tell me the good news - I have 84% kidney function!! The minimum required before a transplant will be made is 80%. Truth be told on the day of the tests I was only allowed a very light protein lunch, instead I had two lovely sandwiches, one filled with chicken, the other a BLT! I forgot to mention the restrictions to Natasja, so when she arrived with them I was far too hungry to say no. So for all I know I have a higher function! But at least I know worst case is 84%.<br />
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What wonderful news! It's so nice to pass one test after the other, with the final goal of getting Pieter healthy getting closer by the day.<br />
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The next step is a meeting with the Nephrologist to discuss the results, which has been booked for 20 September 2012, although I asked Lilly to slot us in earlier should there be a cancellation. After that, it will be the CT-Scan.<br />
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But first, more celebrations this weekend!Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0tag:blogger.com,1999:blog-2880559718944067226.post-43597437966772717122012-08-21T22:48:00.001+01:002012-08-22T06:19:05.421+01:00Kidney function testIt was another early morning rise to have the last crucial test done, the kidney function test. The upside was that I got to travel to London with my lovely wife Natasja, who went all the way to the hospital with me, where I met my good friend Pieter, who kept me company the entire day. What a blessing to have such wonderful people in my life.<br />
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In short, my kidney function is being tested to make sure that they can both survive and function properly on their own inside Pieter and I. They have to be able to operate at a minimum efficiency of 80% before a transplant will be considered.<br />
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This test measures the glomerular filtration rate (GFR). It assesses the ability of the kidneys to ‘clear’ the blood of a substance. A small amount of a harmless radioactive tracer is<br />
injected into a vein and blood samples are taken at intervals over a number of hours to measure the clearance of the radioactive tracer through the kidneys.<br />
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We arrived at St. Bartholomew's Hospital, Queen Elizabeth II wings just after 9am. I greeted Pieter, and said goodbye to Natasja, and Pieter and I went on to the reception of Nuclear Medicine Department. How scary are those words?! Nuclear Medicine! It sound like something from a Sci-fi movie.<br />
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There were a few patients ahead of me, and I was seen at 9:45am by a lovely nurse named Jo. She took my weight and height, and directed me to dreaded chair for the injection. I know it's not as bad as it sounds, and Jo did explain it to me, but it's still not nice being injected voluntarily with a radioactive material!<br />
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Fortunately I didn't feel a thing and had no reaction to the injection. Once the radioactive material was injected, a saline solution was injected to clear the needle for disposal. Jo told me to come back in three hours for my first blood sample of 7ml to be taken. Four samples are taken in total, at hours 3, 4, 5 & 6.<br />
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With 3 hours to spend, Pieter and I went for a walk, and ended up have a drink and a snack at EAT in the recently completed <a href="http://www.onenewchange.com/about-us.aspx" target="_blank">One New Change</a> shopping centre. As usual we ended up relaxing in conversation for about and hour and a half, when we left to visit Natasja at work only 10 minutes away. There we had another relaxing time in their canteen, before heading off for my first blood sample to be taken.<br />
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The needle was inserted into my hand instead of my arm because it needed to remain there until the last sample was taken, which included the white "tap" you can see in the picture below. My hand was wrapped in bandages to prevent any movement or damage to the needle. My body did not like this foreign object at all, and there was a slight burning sensation for the first hour, but then it went away and I forgot about it. After every blood sample taken, saline solution was injected into the vein to stop the blood from clotting around the needle. This was all painless, with only a slight cold sensation.<br />
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After this first sample Pieter and I met Natasja at St. Paul's Cathedral just down the road for lunch. She's so lovely and caring, and bought us sandwiches, drinks and a tub of strawberries and cream! Just what the doctor ordered! The time seemed to fly by and Pieter and I returned to the hospital for more blood samples. During the breaks between the last 3 samples we sat in a little park close by and just enjoyed the quiet surroundings and each other's company.<br />
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Before we knew it, it was all over. Thanks again Pieter for keeping me company, even though you were feeling a bit poorly from last night's dialysis. It was very comforting having you there, and a great way to pass the time.<br />
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I just wish you would've listened to me, and not made me mad with all the radiation still left in me! You knew what would happen, I warned you! AAARRGGHHHH!!! Now you have to deal with the HULK!!!<br />
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<br />Johnhttp://www.blogger.com/profile/14329638579800123718noreply@blogger.com0